Living with ALS Manuals

The ALS Association has created the following manuals because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials have been updated to reflect advancement in patient care and are designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

Reading all six manuals at one time can be overwhelming to persons with ALS and their families. We highly recommend that you only access the information that pertains to your present circumstances. We encourage you to discuss the information in The ALS Association's "Living With ALS" manuals with your healthcare provider and contact the Patient Services staff.

#1 - Living With ALS - What's It All About by Dallas Farshew and Sharon Hulihan

#2 - Living With ALS - Coping with Change by Marlene A. Ciechoski

#3 - Living With ALS - Managing Your Symptoms and Treatment by Deborah Gelinas

#4 - Living With ALS - Functioning When Your Mobility is Affected by Michelle Mendoza and Elizabeth Rafter

#5 - Living With ALS - Adjusting to Swallowing and Speaking Difficulties by Eileen Carr-Davis and Carmen Blokely-Adams

#6 - Living With ALS - Adapting to Breathing Changes by Edward A. Oppenheimer