About ALS About ALSA Public Policy Patient, Family, Caregiver Research
patient services events volunteer newsletter links contact us

   


National ALS Advocacy Day

Over the past six years, ALS Advocates have been instrumental in the historic passage of the 24-month Medicare waiver for ALS patients, as well as increased funding for NIH research for ALS. The ALS community's involvement in public policy outreach also led to federal funding for ALS research through the Department of Defense, and the groundbreaking announcement by Social Security Commissioner Jo Anne Barnhardt of a presumptive eligibility ruling for persons with ALS!
Save the Date National Advocacy Day

Sunday, May 16 - Tuesday, May 18, 2004
"Lighting the Way for a Treatment and Cure"

The 2004 National ALS Advocacy Day and Public Policy Conference will be held on Sunday, May 16th - Tuesday, May 18th at the Washington Plaza Hotel, Washington, D.C.

Make your reservation by April 22nd to receive the special discounted rate

Conference registration:
Registration Fee: $65
(not applicable to patients and their current primary caregiver)

Hotel registration:
$159 per night
Call the Washington Plaza Hotel at 800-424-1140

Please direct all questions to the toll free ALSA Advocacy Hotline: 877-444-2572

New this year! Participate in the 1st Annual Candlelight Vigil on Sunday evening, May 16


 ALSA's Capital Office
601 Pennsylvania Ave., NW
Suite 900, South Building
Washington, DC 20004
(202) 638-6997

Steve Gibson
Vice President, Government Relations and Public Affairs
steve@alsa-national.org